Or maybe it's already here. The temperature has dipped in the last 4 days and while this coming week will be warmer I know heavy coats and mittens are just around the corner. I have a love/hate relationship with fall. I hate the cold but I love the apple picking, the changing colors and cuddling in bed with a heavy blanket. This year fall will be busy for us. Not only do I have tons of fun stuff planned for the kiddos we also have some major appointments coming up for Zachary.
He had an appointment scheduled with Genetics for the end of this months but something happened and they changed it to the 10th of October. He also has an Ophthalmologist appointment in November. We are still waiting on Mayo. Things seem to be moving so slow. Yet so fast at the same time. I got his full MRI report mailed to me and that sent me into a hysterical tailspin. There are a few things on there that were never mentioned to me such as the fact that both his parietal lobes are affected with a delay in the myelin. I have no clue what th is means besides what I have Goggled. His neuro is on vacation and the pediatrician did not feel comfortable talking to me about it. That can't be good right?
Some good news is that Zach has done fantastic in preschool. He's playing with the other kids and listening well. He loves going now. He gets so upset on Wednesdays when the bus drives by the house because he wants to go. I hope this continues. I started to get scared when on the 4th day he was continuing to scream after I left.
Something else to mention real quick the 3rd Annual Walk for Apraxia in Des Moines is on October 1st. If you would like to walk or even just donate you can find the information here
Showing posts with label Apraxia. Show all posts
Showing posts with label Apraxia. Show all posts
Monday, September 19, 2011
Tuesday, August 9, 2011
Our world will change tomorrow.
It may change for the better but if I listen close and read between the lines of what the doctors tell us than it's more likely that the change will knock us on our ass and leave us with more questions then answers. Tomorrow morning is Zachary's MRI. The neurologist is looking for anything out of the ordinary. Signs of a stroke, cysts, tumors, anything that may point us in another direction for helping Zachary. Both his pediatrician and the neurologist he consulted feel that something else is going on besides the Apraxia of speech. In all other area's he seems to be just fine, heck in a few areas he's even "above average". I'm scared. Freeze you in your steps scared about what the scan will show but at the same time I'm thinking to myself that if we know what all is going on we can help him even more. And it won't change the boy he is now or even the man he can become. Wish us luck.
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